Brandon Update!

So I decided to give this blog thing a go. I figured it would be a great way to keep people updated on Brandon and his health conditions since they change so frequently. Brandon is finally home for the 3rd time. Hopefully this time he actually stays home. We're praying hard! He's doing really good, he's very happy here. He still has a million pumps and tubes connected to him, but he doesn't know any different so they don't bother him much. There's so much care involved it's crazy. It's like I became a nurse when I became a mother. It's funny .. I always pictured  myself saying to Mike, "Hey honey, can you grab the diapers?" or "Can you get a bottle ready for him?".. but instead I find myself saying, "Will you help me hold his leg down so I can give him a shot" or "It's time to start his tube feeding and turn on his TPN so we better flush his line with heparin." Ya know.. the usual. =) But we seem to be adjusting to it really well and we're just so grateful to have him home, nothing else seems to matter. We have home health nursing almost around the clock so that is a HUGE blessing! Here are some recent pictures of him.. he's a very happy baby.